Abby update - November 21

Abby continued to take steps down her new recovery paths today, but the work is hard.  It's as if she now knows what she wants her body and voice to do, but when she is unable to do it, she gets so frustrated that she literally cries.  She mouthed a few more words and sounds for the speech therapist, but still gets extremely upset when trying to compose responses such as giving her name or saying "Mom."  She again walked around the gym using a platform walker, but nearly collasped in weariness and perhaps pain at the effort of it.  She is increasing in adeptness at using her hands for occupational therapy tasks, but her body still fights against her in spasms as the therapists try to assist her in sitting outside her wheelchair.  It is a very difficult battle that Abby is fighting.  She is being strong and brave, but I covet your prayers for God to give her strength and will at those difficult times.

 

Still, despite the frustrations, she finds many opportunities to smile.  Today she got to eat a Cheeto and a banana--real Cheetos and bananas, not pureed ones!  The speech therapist was very happy with her chewing and will probably add some diced fruits and cooked veggies to her meals tomorrow.  Abby also seemed very happy to eat Cheetos!  (Cheetos are used because they're very tactile in the mouth, but also dissolve if there were to be some problem.  Who said they're just junk food?  They're therapy food!)  And this evening as I left to come write this post, I left Abby and one of her good friends still giggling in her room.  She's got a good attitude, this girl of ours...

 

So, how can we feel discouraged?  God's eye is on the sparrow, and I know he watches her...

 

Sweet dreams,

Abby's biggest fans

 

P.S.  Please keep in mind Abby's appointment with the ENT on Wednesday at 1 p.m.  It's possible they may take out her trach tube for good at that time.

 

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